JMML Foundation, The

General Organizational Information

Organization Name:

Year Established:

2009

Mission Statement:

The Mission of the JMML Foundation is to cure Juvenile Myelomonocytic Leukemia (JMML) and to improve the quality of life of JMML patients and families through research, education, advocacy, and charity.

Status of organization:

Incorporated non-profit

Professional/Medical Board?:

Yes

501(c)3 Status?:

Yes

Paid staff?:

Board of Directors?:

Yes

Serves the following conditions

Diseases:

Neurofibromatosis 1 (NF1)

Organizational Contact Information

Prefix:

Mr.

Title:

President

Degree:

MBA

First Name:

Frederick

Middle Initial:

Last Name:

Dini

Address:

12263 Arucauna Way

San Diego, 92129

Phone:

+1 858 243 4651

Email:

admins@jmmlfoundation.org

Website Address:

http://www.jmmlfoundation.org

Resources and Services Provided

Languages spoken:

English

German

Italian

Printed materials available in:

English

Information provided for:

Health care professionals

Care providers

Families of affected individuals

The public

Media

Students

Researchers

Range of services include:

Referrals to research studies

Referrals to matching individuals/families

Medical referrals

Peer support

Financial referrals

Non-medical services

Peer-to-peer counseling

Awareness programs

E-mail list

Telephone helpline

Clinical or treatment centers

Speakers

Training

Advocacy

Chat room

Educational materials include:

Fact sheet(s)

Slides

Journal articles on condition

Journal

Research updates

Newsletter

Audiotape(s)

Bibliography

Resource guide

Website

Conferences/workshops for:

Affected individuals and/or families

Researchers

Professionals

Financial assistance for:

Medical care

Transportation

Assistive devices