Jeune Syndrome Information and Support Network

General Organizational Information

Organization Name:

Year Established:

1997

Type of organization:

Condition(s)-specific organization

Mission Statement:

The Jeune Syndrome Info/Support Network provides information and support for families, medical professionals or anyone with an interest in Jeune Syndrome. The mission of our network is linking families to share common medical experiences, information about the syndrome and to offer support.

Professional/Medical Board?:

501(c)3 Status?:

Paid staff?:

Board of Directors?:

Serves the following conditions

Organizational Contact Information

First Name:

Kurt

Last Name:

Hernon

Address:

1400 S.Lakeview Blvd

Lorain, OH, 44052

Phone:

+1 440 246 1578

Email:

kurage@adelphia.net

Resources and Services Provided

Educational materials include:

Fact sheet(s)

Newsletter