Jacob's Cure

General Organizational Information

Organization Name:

Jacob's Cure

Year Established:

2000

Brochure thumbnail:

Brochure:

jacobs_cure_broc.pdf

Type of organization:

Condition(s)-specific organization

Mission Statement:

Jacob's Cure is dedicated to raising the funds necessary to support research aimed at treating and/or curing Canavan disease, a fatal, genetic, neurological disorder that affects children at birth.

Status of organization:

Incorporated non-profit

Professional/Medical Board?:

Yes

501(c)3 Status?:

Yes

Paid staff?:

Yes

Board of Directors?:

Yes

Serves the following conditions

Diseases:

Canavan Disease

Organizational Contact Information

First Name:

Sarah

Last Name:

Goshman

Address:

PO Box 52

Rye, NY, 10580

United States

See map: Google Maps

Phone:

+1 9145024249

Fax:

+1 9149253979

Email:

sarah@jacobscure.org

Website Address:

http://www.jacobscure.org

Resources and Services Provided

Languages spoken:

English

Italian

Spanish

Printed materials available in:

English

Information provided for:

Affected individuals

Families of affected individuals

Care providers

Parents

Fathers

Mothers

Siblings

Grandparents

Health care professionals

Researchers

The public

Teachers

Students

Media

Legislators

Range of services include:

Referrals to research studies

Peer Support

Non-medical services

Political action

Awareness Programs

Advocacy

Speakers

Educational materials include:

Website

Newsletter

Video(s)/Movie(s)

Conferences/workshops for:

Researchers

Research Management:

Linking researchers and families

Participant recruitment

Initiating and conducting research

Awarding research grants

Providing information about clinical trials

Major research collaborators :

UMDNJ-SOM

Major research interests of the organization:

Translational research related to Canavan disease and other white matter disorders

Current projects:

Canavan disease stem cell trial

Number of grants awarded in last calendar year :

Amount of researching funding awarded in last year :

$637000