Iron Overload Diseases Association, Inc.

General Organizational Information

Organization Name:

Year Established:

1981

Type of organization:

Condition(s)-specific organization

Mission Statement:

Iron Overload Disease Association's mission is to lead the search for the millions of Americans and other nationals who have undiagnosed iron overload, to promote adequate treatment, and to prevent the severe health problems and avoidable deaths that results from neglect of iron overload.

Professional/Medical Board?:

501(c)3 Status?:

Yes

Paid staff?:

Board of Directors?:

Yes

Serves the following conditions

Diseases:

Hemochromatosis

Organizational Contact Information

Title:

President

First Name:

Steve

Last Name:

Barfield

Address:

525 Mayflower Rd.

West Palm Beach, FL, 33405

Phone:

+1 561 586 8246

Toll Free Number:

+1 866 768 8629

Email:

iod@ironoverload.org

Website Address:

http://www.ironoverload.org

Resources and Services Provided

Languages spoken:

English

Printed materials available in:

English

Information provided for:

Affected individuals

Families of affected individuals

Care providers

Health care professionals

Researchers

The public

Teachers

Students

Media

Legislators

Range of services include:

Referrals to local chapter or group

Referrals to research studies

Referrals to matching individuals/families

Professional counseling

Peer-to-peer counseling

Crisis intervention

Medical referrals

Genetic counseling

Genetic information

Advocacy

Speakers

Telephone helpline

Educational materials include:

Fact sheet(s)

Pamphlet(s)

Booklet(s)

Website

Newsletter

Bibliography

Conferences/workshops for:

Researchers

Professionals