Iron Disorders Institute

General Organizational Information

Organization Name:

Year Established:

1996

Brochure thumbnail:

Brochure:

iron_disorders_broc.pdf

Mission Statement:

Reducing pain, suffering and unnecessary death due to disorders of iron through awareness, education and research.

Status of organization:

Incorporated non-profit

Professional/Medical Board?:

Yes

501(c)3 Status?:

Paid staff?:

Board of Directors?:

Serves the following conditions

Diseases:

Hemochromatosis

Organizational Contact Information

Title:

VP, Educational Product Development

First Name:

Cheryl

Last Name:

Garrison

Address:

PO Box 2031

Greenville, SC, 20602

Phone:

+1 864 292 1175

Fax:

+1 864 292 1878

Toll Free Number:

+1 888 565 4766

Website Address:

http://www.irondisorders.org

Resources and Services Provided

Languages spoken:

English

Printed materials available in:

English

Range of services include:

Referrals to local chapter or group

Professional counseling

Medical referrals

Peer support

Grief counseling

Referrals for non-medical services

Genetic testing

Awareness programs

Political action

E-mail list

Telephone helpline

Genetic information

Clinical or treatment centers

Respite care

Speakers

Genetic counseling

Advocacy

Educational materials include:

Fact sheet(s)

Magazine

Membership directory

Video(s)/Movie(s)

Slides

Journal articles on condition

Pamphlet(s)

Journal

Booklet(s)

CD Roms

Newsletter

Bibliography

Resource guide

Website

Student materials

Conferences/workshops for:

Affected individuals and/or families

Public

Researchers

Professionals