International WAGR Syndrome Association

General Organizational Information

Organization Name:

Organization Acronym:

IWSA

Year Established:

1999

Type of organization:

Condition(s)-specific organization

Mission Statement:

Our mission is to promote international knowledge and awareness of WAGR syndrome and its complications and treatments, to stimulate research and to reach out to those affected by WAGR syndrome in an effort to improve their lives.

Status of organization:

Unincorporated non-profit

Professional/Medical Board?:

501(c)3 Status?:

Yes

Paid staff?:

Board of Directors?:

Yes

Serves the following conditions

Diseases:

Aniridia

Cancer, Kidney

Childhood Cancer

Chromosome 11 Deletion (p13)

Genital & Reproductive Anomalies in Children

Learning Disabilities

WAGR syndrome

Wilm's Tumor

Organizational Contact Information

Title:

President

First Name:

Tammie

Middle Initial:

Last Name:

Hefty

Address:

PO Box 392

Allen Park , MI, 48101

United States

See map: Google Maps

Email:

ReachingOut@wagr.org

Website Address:

http://www.wagr.org

Resources and Services Provided

Languages spoken:

English

Printed materials available in:

English

Information provided for:

Affected individuals

Families of affected individuals

Care providers

Health care professionals

Researchers

The public

Teachers

Students

Media

Legislators

Range of services include:

E-mail list

Educational materials include:

Pamphlet(s)

Website

Newsletter

Conferences/workshops for:

Affected individuals and/or families