International Premature Ovarian Failure Association, Inc.

General Organizational Information

Organization Name:

Organization Acronym:

IPOFA

Year Established:

1995

Type of organization:

Condition(s)-specific organization

Mission Statement:

Our mission is to provide community, support, and information to women with POF and their loved ones, to increase public awareness and understanding of POF, and to work with HCP to better understand this condition.

Status of organization:

Incorporated non-profit

Professional/Medical Board?:

501(c)3 Status?:

Yes

Paid staff?:

Board of Directors?:

Yes

Serves the following conditions

Diseases:

premature ovarian failure

Organizational Contact Information

Title:

President

First Name:

Catherine

Last Name:

Corp

Address:

PO Box 23643

Alexandria, VA, 22304

Phone:

+1 703 913 4787

Email:

webmaster@ipofa.org

Website Address:

http://www.ipofa.org

Resources and Services Provided

Languages spoken:

English

Printed materials available in:

English

German

French

Italian

Japanese

Spanish

Information provided for:

Affected individuals

Families of affected individuals

Care providers

Health care professionals

The public

Range of services include:

Referrals to local chapter or group

Referrals to research studies

Referrals to matching individuals/families

Peer-to-peer counseling

Medical referrals

Advocacy

Speakers

Telephone helpline

E-mail list

Educational materials include:

Fact sheet(s)

Booklet(s)

Website

Newsletter

Journal articles on condition

Research updates

Membership directory

Conferences/workshops for:

Affected individuals and/or families

Research Management:

Linking researchers and families

Participant recruitment