International Mosaic Down Syndrome Association

General Organizational Information

Organization Name:

Organization Acronym:

IMDSA

Year Established:

2009

Mission Statement:

IMDSA is designed to provide support, information, research and to increase awareness in the medical, educational and public communities throughout the world.

Status of organization:

Incorporated non-profit

Professional/Medical Board?:

Yes

501(c)3 Status?:

Yes

Paid staff?:

Board of Directors?:

Yes

Serves the following conditions

Organizational Contact Information

Title:

President

First Name:

Kristy

Last Name:

Colvin

Address:

PO Box 1052

Franklin, TX, 77856

Phone:

+1 979 828 4177

Fax:

+1 775 295 9373

Toll Free Number:

+1 1 888 MDS LINK

Email:

president@imdsa.org

ListServe:

http://health.groups.yahoo.com/group/MosaicDS/

Website Address:

http://www.imdsa.org

Resources and Services Provided

Languages spoken:

Spanish

Norwegian

English

French

German

Portuguese

Swedish

Printed materials available in:

Spanish

English

Portuguese

Information provided for:

Affected individuals

Health care professionals

Care providers

Families of affected individuals

The public

Teachers

Legislators

Media

Students

Researchers

Other

Range of services include:

Referrals to research studies

Referrals to matching individuals/families

Peer support

Other

Peer-to-peer counseling

Awareness programs

E-mail list

Telephone helpline

Genetic information

Speakers

Advocacy

Other

Educational materials include:

Fact sheet(s)

Membership directory

Journal articles on condition

Pamphlet(s)

Booklet(s)

Research updates

Newsletter

Resource guide

Website

Other

Conferences/workshops for:

Affected individuals and/or families

Public

Researchers

Professionals

Other

Financial assistance for:

Other