Printed materials available in:
Information provided for:
Affected individuals
Health care professionals
Care providers
Families of affected individuals
The public
Teachers
Legislators
Media
Students
Researchers
Range of services include:
Referrals to local chapter or group
Referrals to research studies
Medical referrals
Awareness programs
Telephone helpline
Advocacy
Educational materials include:
Fact sheet(s)
Video(s)/Movie(s)
Pamphlet(s)
Journal
Research updates
Website
Student materials
Conferences/workshops for:
Researchers
Professionals