International FOP Association

General Organizational Information

Organization Name:

Year Established:

1988

Brochure thumbnail:

Brochure:

internationalfoporganisation.pdf

Mission Statement:

The IFOPA is an organization for people who have FOP and their families to share information, support medical research & to educate physicians & other interested individuals about FOP.

Status of organization:

Incorporated non-profit

Professional/Medical Board?:

501(c)3 Status?:

Paid staff?:

Board of Directors?:

Serves the following conditions

Diseases:

Fibrodysplasia Ossificans Progressiva

Organizational Contact Information

Title:

President

First Name:

Jeannie

Last Name:

Peeper

Address:

PO Box 196217

Winter Springs, FL, 32719-6217

Phone:

+1 407 365 4194

Email:

jlpfop@aol.com

Website Address:

http://www.ifopa.org

Resources and Services Provided

Languages spoken:

English

Printed materials available in:

English

French

Portuguese

Spanish

Range of services include:

Genetic testing

Chat room

Educational materials include:

Membership directory

Video(s)/Movie(s)

Journal articles on condition

Pamphlet(s)

Newsletter

Website