International Costello Syndrome Support Group

General Organizational Information

Organization Name:

Organization Acronym:

ICSSG

Branch/Affiliation:

CSFN

Year Established:

1997

Mission Statement:

Providing support and information for families affected by Costello syndrome.

Status of organization:

Incorporated non-profit

Professional/Medical Board?:

Yes

501(c)3 Status?:

Paid staff?:

Board of Directors?:

Yes

Serves the following conditions

Organizational Contact Information

First Name:

Colin

Last Name:

Stone

Address:

90 Parkfield Road North New Moston

Manchester, M40 4RQ

Phone:

+1 44 161 682 247

Email:

c.stone8@ntlworld.com

Website Address:

http://www.costellokids.co.uk

Resources and Services Provided

Languages spoken:

English

Printed materials available in:

English

Information provided for:

Other

Range of services include:

Professional counseling

Peer support

Other

Awareness programs

E-mail list

Telephone helpline

Pen pal program

Chat room

Other

Educational materials include:

Fact sheet(s)

Website

Other

Conferences/workshops for:

Affected individuals and/or families

Researchers

Other

Financial assistance for:

Other