International Children's Anophthalmia Network

General Organizational Information

Organization Name:

Organization Acronym:

ICAN

Year Established:

1969

Mission Statement:

The International Children's Anophthalmia & Micropthalmia Network (ican), a voluntary not-for-profit organization, is a group of families and professionals dedicated to lending support to individuals who want to learn more about microphthalmia and anophthalmia (eyes that are abnormally small, completely absent, or consist only of vestigial portions).

Status of organization:

Incorporated non-profit

Professional/Medical Board?:

Yes

501(c)3 Status?:

Paid staff?:

Board of Directors?:

Serves the following conditions

Diseases:

Anophthalmia

Organizational Contact Information

Title:

Genetic Counselor

Degree:

First Name:

Tanya

Last Name:

Bardakjian

Address:

Albert Einstein Medical Center 5501 Old York Rd, Levy 2 West

Philadelphia, PA, 19141

Phone:

+1 215 456 8726

Fax:

+1 215 456 2356

Toll Free Number:

+1 1 800 580 ican

Email:

ican@anophthalmia.org

Website Address:

http://www.anophthalmia.org

Resources and Services Provided

Languages spoken:

Spanish

English

Printed materials available in:

Spanish

English

Information provided for:

Affected individuals

Health care professionals

Care providers

Families of affected individuals

The public

Media

Students

Researchers

Other

Range of services include:

Referrals to research studies

Referrals to matching individuals/families

Medical referrals

Peer support

Non-medical services

Other

Peer-to-peer counseling

Genetic testing

E-mail list

Telephone helpline

Genetic information

Clinical or treatment centers

Services for the visually impaired

Genetic counseling

Advocacy

Other

Educational materials include:

Fact sheet(s)

Video(s)/Movie(s)

Pamphlet(s)

Booklet(s)

Research updates

Newsletter

Website

Other

Conferences/workshops for:

Affected individuals and/or families

Researchers

Professionals

Other

Financial assistance for:

Other