Inflammatory Breast Cancer Research Foundation

General Organizational Information

Organization Name:

Organization Acronym:

IBC Research Foundation or ibcRF

Year Established:

1999

Type of organization:

Condition(s)-specific organization

Mission Statement:

Our mission is to assist scientists and researchers in their quest to determine the definitive causes of inflammatory breast cancer. The Inflammatory Breast Cancer Research Foundation seeks to assist them in their work so effective and meaningful detection and diagnosis, prevention and treatment can be pursued and achieved.

Status of organization:

Incorporated non-profit

Professional/Medical Board?:

501(c)3 Status?:

Yes

Paid staff?:

Board of Directors?:

Yes

Serves the following conditions

Diseases:

Cancer, Breast

Organizational Contact Information

Title:

Executive Director

Degree:

RN, BSN

First Name:

Ginny (Virginia)

Middle Initial:

Last Name:

Mason

Address:

PMB 149 321 High School Road NE, STE D3

Bainbridge Island, WA, 98110

Phone:

+1 251 866 0907

Fax:

+1 877 202 5981

Toll Free Number:

+1 877 786 7422

Email:

information@ibcresearch.org

Website Address:

http://www.ibcresearch.org

Resources and Services Provided

Languages spoken:

English

Printed materials available in:

English

Information provided for:

Affected individuals

Families of affected individuals

Care providers

Health care professionals

Researchers

The public

Students

Media

Range of services include:

Referrals to research studies

Referrals to matching individuals/families

Peer-to-peer counseling

Non-medical services

Advocacy

Speakers

Telephone helpline

E-mail list

Educational materials include:

Fact sheet(s)

Pamphlet(s)

Website

Newsletter

Journal articles on condition

Slides

Research updates

Video(s)/Movie(s)

Conferences/workshops for:

Affected individuals and/or families

Public

Researchers

Professionals