Printed materials available in:
Information provided for:
Affected individuals
Families of affected individuals
Care providers
Health care professionals
Media
Range of services include:
Referrals to local chapter or group
Referrals to matching individuals/families
Professional counseling
Peer-to-peer counseling
Medical referrals
Financial referrals
Advocacy
Speakers
E-mail list
Chat room
Educational materials include:
Pamphlet(s)
Booklet(s)
Website
Newsletter
Journal
CD Roms
Resource guide
Conferences/workshops for:
Affected individuals and/or families
Professionals