IDEAS (IsoDicentric 15 Exchange Advocacy & Support)

General Organizational Information

Organization Name:

Organization Acronym:

IDEAS

Year Established:

1969

Type of organization:

Condition(s)-specific organization

Mission Statement:

IDEAS provides family support and promotes awareness, research and targeted treatments for chromosome 15q duplication syndrome. IDEAS offers help and hope for chromosome 15q duplications.

Status of organization:

Incorporated non-profit

Professional/Medical Board?:

501(c)3 Status?:

Paid staff?:

Board of Directors?:

Serves the following conditions

Diseases:

Interstitial Duplication 15q

Organizational Contact Information

Title:

Board Chair

Degree:

MSS

First Name:

Nicole

Last Name:

Cleary

Address:

6699 SE Scott Drive

Portland, OR, 97215

Phone:

+1 503 253 2872

Fax:

+1 503 253 2872

Email:

info@idic15.org

Website Address:

http://www.idic15.org

Resources and Services Provided

Languages spoken:

English

Printed materials available in:

English

German

Italian

Spanish

Information provided for:

Families of affected individuals

Health care professionals

Researchers

The public

Teachers

Students

Range of services include:

Referrals to research studies

Referrals to matching individuals/families

E-mail list

Educational materials include:

Fact sheet(s)

Pamphlet(s)

Website

Newsletter

Bibliography

Membership directory

Conferences/workshops for:

Affected individuals and/or families

Researchers

Professionals