Hypomelanosis of Ito Family Support Network

General Organizational Information
Organization Name: 
Hypomelanosis of Ito Family Support Network
Year Established: 
2009
Mission Statement: 
The Family Support Network's aim is to enrich the lives of families and children affected by Hypomelanosis of Ito by facilitating and encouraging communication and linking families together, and by being a focal point offering verbal and written support.
Professional/Medical Board?: 
No
501(c)3 Status?: 
No
Paid staff?: 
No
Board of Directors?: 
No
Serves the following conditions
Organizational Contact Information
Title: 
Coordinator
First Name: 
Sandra
Last Name: 
Field
Address: 
33 Fernworthy Close Torquay
GB TQ2 Devon
Phone: 
+1 1 803 401018
Fax: 
+1 1 277 363307
Email: 
tgrant@cc.ernsty.co.uk
Website Address: 
http://www.e-fervour.com/hits/index.htm
Resources and Services Provided
Information provided for: 
Other
Range of services include: 
Referrals to local chapter or group
Referrals for non-medical services
Other
Telephone helpline
Other
Educational materials include: 
Newsletter
Other
Conferences/workshops for: 
Other
Financial assistance for: 
Other
Combined Federal Campaign (CFC)
#80146
4301 Connecticut Avenue NW - Suite 404
Washington, DC 20008-2369
Tel: 202.966.5557 Fax: 202.966.8553
info@geneticalliance.org