Hypertrophic Cardiomyopathy Association

General Organizational Information

Organization Name:

Organization Acronym:

HCMA

Year Established:

1996

Brochure thumbnail:

Brochure:

hypertrophiccardiomyopathyassociation.pdf

Mission Statement:

Our mission is to provide access to information on all treatment options, life style issues and peer support to patients and families. We also provide access to information on research and advances in HCM research.

Status of organization:

Incorporated non-profit

Professional/Medical Board?:

Yes

501(c)3 Status?:

Yes

Paid staff?:

Yes

Board of Directors?:

Yes

Serves the following conditions

Diseases:

Hypertrophic Cardiomyopathy

Organizational Contact Information

Title:

Founding President

First Name:

Lisa

Last Name:

Salberg

Address:

PO Box 306 328 Green Pond Road

Hibernia, NJ, 07842

Phone:

+1 973 983 7429

Fax:

+1 973 983 7870

Toll Free Number:

+1 877 329 4262

Email:

support@4hcm.org

Website Address:

http://www.4hcm.org

Resources and Services Provided

Languages spoken:

English

Norwegian

Spanish

Printed materials available in:

English

Information provided for:

Affected individuals

Health care professionals

Care providers

Families of affected individuals

The public

Teachers

Legislators

Parents only

Siblings only

Media

Students

Researchers

Range of services include:

Referrals to research studies

Referrals to matching individuals/families

Medical referrals

Peer support

Grief counseling

Referrals for non-medical services

Non-medical services

Peer-to-peer counseling

Awareness programs

Political action

Telephone helpline

Genetic information

Speakers

Pen pal program

Training

Advocacy

Chat room

Educational materials include:

Fact sheet(s)

Journal articles on condition

Pamphlet(s)

Booklet(s)

CD Roms

Newsletter

Website

Student materials

Conferences/workshops for:

Affected individuals and/or families

Public

Researchers

Professionals