Hydrocephalus Association

General Organizational Information

Organization Name:

Year Established:

1983

Mission Statement:

The Hydrocephalus Association provides support, education and advocacy for families, individuals and professionals dealing with the complex issues of hydrocephlaus.

Status of organization:

Incorporated non-profit

Professional/Medical Board?:

Yes

501(c)3 Status?:

Yes

Paid staff?:

Yes

Board of Directors?:

Yes

Serves the following conditions

Diseases:

Hydrocephalus

Organizational Contact Information

Title:

Director of Support and Education

First Name:

Pip

Last Name:

Marks

Address:

870 Market Street Suite 705

San Francisco, CA, 94102

Phone:

+1 415 732 7040

Fax:

+1 415 732 7044

Toll Free Number:

+1 888 598 3789

Email:

info@hydroassoc.org

Website Address:

http://www.hydroassoc.org

Resources and Services Provided

Languages spoken:

Arabic

Chinese

English

French

Spanish

Printed materials available in:

English

Spanish

Information provided for:

Affected individuals

Health care professionals

Care providers

Families of affected individuals

The public

Teachers

Legislators

Media

Students

Researchers

Range of services include:

Referrals to local chapter or group

Referrals to research studies

Referrals to matching individuals/families

Medical referrals

Peer support

Peer-to-peer counseling

Political action

E-mail list

Telephone helpline

Clinical or treatment centers

Advocacy

Educational materials include:

Fact sheet(s)

Magazine

Membership directory

Video(s)/Movie(s)

Journal articles on condition

Pamphlet(s)

Booklet(s)

CD Roms

Newsletter

Resource guide

Website

Student materials

Conferences/workshops for:

Affected individuals and/or families

Public

Researchers

Professionals

Financial assistance for:

Scholarships