Huntington's Disease Society of America - Michigan Chapter

General Organizational Information

Organization Name:

Organization Acronym:

HDSA Michigan Chapter

Branch/Affiliation:

Huntington's Disease Society of America

Year Established:

1973

Type of organization:

Condition(s)-specific organization

Mission Statement:

The Michigan Chapter works locally to fulfill the mission of The Huntington's Disease Society of America by promoting and supporting research to find a cure for HD, helping people and families affected by the disease, and educating the public and health care professionals about HD.

Status of organization:

Incorporated non-profit

Professional/Medical Board?:

501(c)3 Status?:

Yes

Paid staff?:

Yes

Board of Directors?:

Yes

Serves the following conditions

Diseases:

Huntington disease

Organizational Contact Information

Title:

President of Chapter

First Name:

David

Last Name:

Stickles

Address:

1174 James Savage Road

Midland, MI, 48640-5651

United States

See map: Google Maps

Phone:

+1 989 832 4170

Fax:

+1 989 832 4171

Toll Free Number:

+1 800 909 0073

Email:

hdsami@att.net

Website Address:

http://www.hdsa-mi.org

Resources and Services Provided

Languages spoken:

English

Printed materials available in:

English

Information provided for:

Affected individuals

Families of affected individuals

Care providers

Health care professionals

Researchers

The public

Teachers

Students

Media

Legislators

Range of services include:

Referrals to local chapter or group

Referrals to research studies

Referrals to matching individuals/families

Professional counseling

Medical referrals

Genetic information

Referrals for non-medical services

Advocacy

Telephone helpline

Educational materials include:

Fact sheet(s)

Pamphlet(s)

Booklet(s)

Website

Newsletter

Research updates

Video(s)/Movie(s)

Lending library

Conferences/workshops for:

Affected individuals and/or families

Public

Researchers

Professionals

No Revisions:

I have reviewed my listing and there are no updates to be made at this time.