Huntington's Disease Society of America - MA Chapter

General Organizational Information

Organization Name:

Year Established:

1967

Type of organization:

Condition(s)-specific organization

Mission Statement:

The New England HDSA office provides education, advocacy, support, and care to people with Huntington's Disease, their families and to professional caregivers in NH, ME, MA, and RI, funds research efforts and provides an extensive education outreach program.

Professional/Medical Board?:

501(c)3 Status?:

Paid staff?:

Board of Directors?:

Serves the following conditions

Organizational Contact Information

Title:

Executive Director

First Name:

Kimberly

Last Name:

Gleason

Address:

80 E Concord Street

Boston, MA, 2118

Phone:

+1 617 638 8333

Fax:

+1 617 638 8331

Email:

kimberly.gleason@bmc.org

Website Address:

http://www.hdsa.org/ma

Resources and Services Provided

Range of services include:

Medical referrals

Clinical or treatment centers

Referrals for non-medical services

Telephone helpline

Educational materials include:

Fact sheet(s)

Pamphlet(s)

Booklet(s)

Newsletter

Video(s)/Movie(s)

Lending library

Conferences/workshops for:

Professionals