Hunter's Hope Foundation

General Organizational Information

Organization Name:

Year Established:

1997

Brochure thumbnail:

Brochure:

UNBS Brochure 1-1-11.pdf

Type of organization:

General support or information organization

Mission Statement:

The Foundation's mission is to increase public awareness of Krabbe Disease and other leukodystrophies, as well as to increase the likelihood of early detection and treatment. The Foundation's goal is to fund research efforts to identify new treatments, therapies and a cure for Krabbe Disease.

Status of organization:

Incorporated non-profit

Professional/Medical Board?:

501(c)3 Status?:

Yes

Paid staff?:

Board of Directors?:

Serves the following conditions

Diseases:

Krabbe leukodystrophy

Krabbe Disease

Leukodystrophy

Organizational Contact Information

Title:

Chief Executive Officer

First Name:

Jacque

Last Name:

Waggoner

Address:

PO Box 643

Orchard Park, NY, 14127

United States

See map: Google Maps

Phone:

+1 716 667 1200

Fax:

+1 716 667 1212

Toll Free Number:

+1 877 984 4693

Email:

jacque@huntershope.org

Website Address:

http://www.huntershope.org

Resources and Services Provided

Languages spoken:

English

Printed materials available in:

English

Information provided for:

Affected individuals

Families of affected individuals

Care providers

Parents

Fathers

Mothers

Siblings

Grandparents

Health care professionals

Researchers

The public

Teachers

Students

Media

Legislators

Range of services include:

Peer Support

Awareness Programs

Advocacy

Educational materials include:

Pamphlet(s)

Website

Journal articles on condition

Research updates

Video(s)/Movie(s)

Resource guide

Conferences/workshops for:

Affected individuals and/or families

Researchers