Hidradenitis Suppurativa USA, Inc.

General Organizational Information

Organization Name:

Organization Acronym:

HS-USA

Year Established:

2009

Type of organization:

International Condition(s)-specific organization

Mission Statement:

We are dedicated to bringing about greater awareness and understanding of Hidradenitis Suppurativa, a disease widely spread but largely unknown, within the medical profession and in the public at large; to encourage teaching in the schools; to train health practitioners to help identify, diagnose, and treat HS; and to foster scientific research.

Status of organization:

Incorporated non-profit

Professional/Medical Board?:

501(c)3 Status?:

Paid staff?:

Board of Directors?:

Serves the following conditions

Diseases:

Hidradenitis Suppurativa

Organizational Contact Information

First Name:

Maina

Middle Initial:

Last Name:

Donaldson

Address:

7362 High Hill Drive

Brighton, MI, 48116-9143

Phone:

+1 928 279 0833

Email:

webmaster@hs-usa.org

Website Address:

http://hs-usa.org

Resources and Services Provided

Languages spoken:

English

German

Portuguese

Printed materials available in:

English

Information provided for:

Affected individuals

Health care professionals

Care providers

Families of affected individuals

The public

Teachers

Media

Students

Researchers

Other

Range of services include:

Referrals to local chapter or group

Referrals to research studies

Referrals to matching individuals/families

Medical referrals

Peer support

Other

Peer-to-peer counseling

Genetic testing

Awareness programs

E-mail list

Telephone helpline

Speakers

Training

Advocacy

Chat room

Other

Educational materials include:

Fact sheet(s)

Pamphlet(s)

Newsletter

Resource guide

Website

Other

Conferences/workshops for:

Affected individuals and/or families

Public

Professionals

Other

Financial assistance for:

Other