Printed materials available in:
Information provided for:
Affected individuals
Families of affected individuals
Care providers
Parents
Fathers
Mothers
Siblings
Grandparents
Health care professionals
Researchers
The public
Teachers
Students
Media
Legislators
Range of services include:
Educational materials include:
Fact sheet(s)
Website
Journal articles on condition
Bibliography
Research updates
Resource guide
Conferences/workshops for: