Hide And Seek Foundation for Lysosomal Disease

General Organizational Information

Organization Name:

Organization Acronym:

H&S

Branch/Affiliation:

N/A

Year Established:

2009

Type of organization:

Condition(s)-specific organization

Mission Statement:

We are a foundation dedicated to raising awareness and funds for research to treat, cure and prevent Lysosomal Disease as a whole.

Status of organization:

Incorporated non-profit

Professional/Medical Board?:

501(c)3 Status?:

Yes

Paid staff?:

Yes

Board of Directors?:

Yes

Serves the following conditions

Diseases:

Lysosomal Disorders

Organizational Contact Information

Title:

Director of Public Information

First Name:

Stephanie

Last Name:

Lyn

Address:

4123 Lankershim Blvd Suite 302

North Hollywood, CA, 91602

Phone:

+1 818 762 8621

Fax:

+1 818 762 2502

Email:

Info@hideandseek.org

Website Address:

http://www.hideandseek.org

Resources and Services Provided

Languages spoken:

English

Printed materials available in:

English

Information provided for:

Affected individuals

Health care professionals

Care providers

Families of affected individuals

The public

Teachers

Legislators

Media

Students

Researchers

Range of services include:

Referrals to local chapter or group

Referrals to research studies

Referrals to matching individuals/families

Professional counseling

Medical referrals

Rehabilitation resource referrals

Peer support

Grief counseling

Referrals for non-medical services

Financial referrals

Non-medical services

Crisis intervention

Genetic testing

Awareness programs

Political action

E-mail list

Genetic information

Clinical or treatment centers

Genetic counseling

Advocacy

Air transportation

Chat room

Educational materials include:

Fact sheet(s)

Video(s)/Movie(s)

Slides

Pamphlet(s)

Journal

Booklet(s)

Research updates

Bibliography

Resource guide

Website

Conferences/workshops for:

Affected individuals and/or families

Public

Researchers

Professionals

Financial assistance for:

Organizational

Transportation