Heterotaxy Foundation

General Organizational Information

Organization Name:

Year Established:

2009

Type of organization:

Condition(s)-specific organization

Mission Statement:

The Heterotaxy Foundation is a non-profit organization created to raise funds for research and promote awareness of a rare disease called Heterotaxy Syndrome.

Status of organization:

Incorporated non-profit

Professional/Medical Board?:

501(c)3 Status?:

Paid staff?:

Board of Directors?:

Yes

Serves the following conditions

Diseases:

Asplenia

Polysplenia

Situs Ambiguous

Situs inversus

Organizational Contact Information

Title:

President

First Name:

Bruce

Last Name:

Southers

Address:

P.O. Box 274

Hebron, KY, 41048

United States

See map: Google Maps

Email:

info@heterotaxy.org

Website Address:

http://www.heterotaxy.org

Resources and Services Provided

Languages spoken:

English

Information provided for:

Affected individuals

Families of affected individuals

Range of services include:

Non-medical services

Educational materials include:

Pamphlet(s)

Website