Hereditary Neuropathy Foundation

General Organizational Information

Organization Name:

Organization Acronym:

HNF

Year Established:

2009

Type of organization:

Condition(s)-specific organization

Mission Statement:

HNF promotes and supports both clinical and primary CMT research. We are also actively committed to increasing awareness of the disease through all available media outlets, including print, radio and television as well as fundraising programs. While our members give a face to CMT, HNF provides a strong, organizational voice to those living with CMT all over the world.

Status of organization:

Incorporated non-profit

Professional/Medical Board?:

501(c)3 Status?:

Yes

Paid staff?:

Yes

Board of Directors?:

Yes

Serves the following conditions

Diseases:

Charcot-Marie-Tooth Disease

Organizational Contact Information

Title:

Office Manager/Membership Director

First Name:

Mary

Last Name:

London

Address:

1751 2nd Ave. Suite 103

New York, New York, 10128

Phone:

+1 212 722 8396

Fax:

+1 917 591 2758

Toll Free Number:

+1 1 877 463 1287

Email:

info@hnf-cure.org

Website Address:

http://www.hnf-cure.org

Resources and Services Provided

Languages spoken:

English

Printed materials available in:

English

Information provided for:

Affected individuals

Families of affected individuals

Care providers

Health care professionals

Researchers

The public

Teachers

Media

Legislators

Range of services include:

Genetic testing

Genetic information

Political action

Advocacy

Speakers

Telephone helpline

E-mail list

Educational materials include:

Fact sheet(s)

Pamphlet(s)

Booklet(s)

Website

Newsletter

Research updates