Hereditary Disease Foundation

General Organizational Information

Organization Name:

Organization Acronym:

HDF

Year Established:

1968

Brochure thumbnail:

Brochure:

hereditarydiseasefoundation.pdf

Mission Statement:

The Hereditary Disease Foundation is a non-profit, basic-science organization dedicated to the cure of genetic disease, with a focus on Huntington disease.

Status of organization:

Incorporated non-profit

Professional/Medical Board?:

Yes

501(c)3 Status?:

Paid staff?:

Yes

Board of Directors?:

Serves the following conditions

Organizational Contact Information

Title:

President

Degree:

PhD

First Name:

Nancy

Middle Initial:

Last Name:

Wexler

Address:

3960 Broadway, 6th Floor

New York, NY, 10032

Phone:

+1 212 928 2121

Fax:

+1 212 928 2172

Email:

cures@hdfoundation.org

Website Address:

http://www.hdfoundation.org

Resources and Services Provided

Languages spoken:

English

Printed materials available in:

English

Information provided for:

Affected individuals

Health care professionals

Care providers

Families of affected individuals

The public

Teachers

Media

Students

Range of services include:

Referrals to local chapter or group

Referrals to research studies

Professional counseling

Rehabilitation resource referrals

Peer support

Crisis intervention

Political action

Financial/estate planning

E-mail list

Advocacy

Educational materials include:

Membership directory

Video(s)/Movie(s)

Research updates

Newsletter

Website

Conferences/workshops for:

Researchers