Printed materials available in:
Information provided for:
Affected individuals
Families of affected individuals
Care providers
Health care professionals
Researchers
Teachers
Students
Media
Legislators
Range of services include:
Referrals to research studies
Referrals to matching individuals/families
Peer-to-peer counseling
Crisis intervention
Political action
Advocacy
Training
Speakers
Educational materials include:
Conferences/workshops for:
Affected individuals and/or families
Public
Researchers
Professionals