Hemophilia Federation of America

General Organizational Information

Organization Name:

Organization Acronym:

HFA

Year Established:

1994

Type of organization:

National organization

Mission Statement:

The Hemophilia Federation of America is a national non-profit organization that assists and advocates for the bleeding disorders community.

Status of organization:

Incorporated non-profit

Professional/Medical Board?:

Yes

501(c)3 Status?:

Yes

Paid staff?:

Yes

Board of Directors?:

Yes

Serves the following conditions

Diseases:

Hemophilia A

Hemophilia

Hemophilia B

Von Willebrand Disease

Organizational Contact Information

Title:

Executive Director

Degree:

MBA

First Name:

Kimberly

Middle Initial:

Last Name:

Haugstad

Address:

210 7th St SE Suite 200 B

Washington , DC, 20003

United States

See map: Google Maps

Phone:

+1 202 675 6984

Fax:

+1 202 675 6983

Toll Free Number:

+1 800 230 9797

Email:

k.haugstad@hemophiliafed.org

Website Address:

http://www.hemophiliafed.org

Resources and Services Provided

Languages spoken:

English

Printed materials available in:

English

Information provided for:

Affected individuals

Mothers only

Grandparents only

Care providers

Families of affected individuals

Fathers only

The public

Teachers

Legislators

Parents only

Siblings only

Media

Students

Range of services include:

Referrals to local chapter or group

Referrals to research studies

Referrals to matching individuals/families

Peer support

Referrals for non-medical services

Peer-to-peer counseling

Awareness programs

Advocacy

Chat room

Educational materials include:

Video(s)/Movie(s)

Pamphlet(s)

Newsletter

Resource guide

Website

Student materials

Conferences/workshops for:

Affected individuals and/or families

Financial assistance for:

Organizational

Scholarships