Hailey-Hailey Disease Society

General Organizational Information

Organization Name:

Organization Acronym:

HHD Society

Year Established:

2009

Type of organization:

International Condition(s)-specific organization

Mission Statement:

Our primary mission is the dissemination of free, correct and useful information and support for HHD patients and the health care community. We support this website and forum and manage the Yahoo Group, TalkHHD.

Status of organization:

Incorporated non-profit

Professional/Medical Board?:

501(c)3 Status?:

Yes

Paid staff?:

Board of Directors?:

Yes

Serves the following conditions

Diseases:

Hailey-Hailey Disease

Organizational Contact Information

First Name:

Jules

Last Name:

McNaughton

Address:

515 E Park St

Harrison, 48625

United States

See map: Google Maps

Phone:

+1 989 539 3796 x 100

Email:

info@haileyhailey.com

Website Address:

http://haileyhailey.com

Resources and Services Provided

Languages spoken:

English

Printed materials available in:

English

Information provided for:

Affected individuals

Health care professionals

Families of affected individuals

The public

Teachers

Media

Students

Researchers

Other

Range of services include:

Peer support

Other

Peer-to-peer counseling

Awareness programs

E-mail list

Advocacy

Chat room

Other

Educational materials include:

Fact sheet(s)

Journal articles on condition

Pamphlet(s)

Bibliography

Website

Other

Conferences/workshops for:

Affected individuals and/or families

Other

Financial assistance for:

Other