Genetic Support Network of Victoria

General Organizational Information

Organization Name:

Year Established:

1998

Type of organization:

State organization

Mission Statement:

The Genetic Support Network of Victoria's mission is to provide an information, education, support and advocacy network which empowers people to overcome the challenges presented to them by genetic conditions.

Status of organization:

Incorporated non-profit

Professional/Medical Board?:

501(c)3 Status?:

Paid staff?:

Yes

Board of Directors?:

Yes

Serves the following conditions

Diseases:

Genetic Conditions

Organizational Contact Information

Title:

Genetic Support Worker

Degree:

BBSc; GC

First Name:

Tarli

Last Name:

Bogtstra

Address:

10th Floor, Royal Children's Hospital Flemington Road

Parkville, VIC, 3052

Phone:

+1 61 3 8341 6315

Fax:

+1 61 3 8341 6390

TDD Number:

+1 61 3 8341 6315

Email:

info@gsnv.org.au

Website Address:

http://www.gsnv.org.au

Resources and Services Provided

Languages spoken:

English

Printed materials available in:

English

Information provided for:

Affected individuals

Mothers only

Grandparents only

Health care professionals

Care providers

Families of affected individuals

Fathers only

The public

Teachers

Legislators

Parents only

Siblings only

Media

Students

Researchers

Range of services include:

Referrals to local chapter or group

Referrals to research studies

Referrals to matching individuals/families

Medical referrals

Peer support

Referrals for non-medical services

Peer-to-peer counseling

Awareness programs

Political action

Telephone helpline

Genetic information

Speakers

Training

Advocacy

Educational materials include:

Fact sheet(s)

Magazine

Journal articles on condition

Pamphlet(s)

Lending library

Booklet(s)

Newsletter

Website

Conferences/workshops for:

Affected individuals and/or families

Public

Researchers

Professionals

Financial assistance for:

Organizational