FSH Society, Inc.

General Organizational Information

Organization Name:

FSH Society, Inc.

Year Established:

1989

Type of organization:

Condition(s)-specific organization

Mission Statement:

The Facioscapulohumeral Muscular Dystrophy Society (FSH Society) is a 501(c)(3) non-profit tax-exempt U.S. corporation organized in 1991 to fund, encourage and promote scientific and clinical research on Facioscapulohumeral Muscular Dystrophy (FSHD).

Professional/Medical Board?:

501(c)3 Status?:

Paid staff?:

Board of Directors?:

Serves the following conditions

Organizational Contact Information

Title:

Executive Director

First Name:

Carol

Last Name:

Perez

Address:

3 Westwood Road

Lexington, MA, 2420

Phone:

+1 781 275 2044

Fax:

+1 781 860 0599

Email:

daniel.perez@fshsociety.org

Website Address:

http://www.fshsociety.org

Resources and Services Provided

Range of services include:

Referrals to local chapter or group

Telephone helpline

Educational materials include:

Fact sheet(s)

Pamphlet(s)

Booklet(s)

Newsletter

Video(s)/Movie(s)

Lending library

Conferences/workshops for:

Researchers

Professionals