Friedreich's Ataxia Research Alliance

General Organizational Information

Organization Name:

Organization Acronym:

FARA

Year Established:

1998

Type of organization:

International Condition(s)-specific organization

Mission Statement:

FARA's Mission is to marshal and focus the resources and relationships needed to cure FA by raising funds for research, promoting public awareness, and aligning scientists, patients, clinicians, government agencies, pharmaceutical companies and other organizations dedicated to curing FA and related diseases.

Status of organization:

Incorporated non-profit

Professional/Medical Board?:

Yes

501(c)3 Status?:

Yes

Paid staff?:

Yes

Board of Directors?:

Yes

Serves the following conditions

Diseases:

Friedreich Ataxia (FA)

Organizational Contact Information

Degree:

First Name:

Jennifer

Middle Initial:

Last Name:

Farmer

Address:

102 Pickering Way Suite 200

Exton, 19341

United States

See map: Google Maps

Phone:

+1 484 875 3015

Fax:

+1 610 363 1506

Email:

jen.farmer@curefa.org

Website Address:

http://www.curefa.org

Resources and Services Provided

Languages spoken:

English

Printed materials available in:

English

Information provided for:

Affected individuals

Health care professionals

Care providers

Families of affected individuals

The public

Legislators

Media

Students

Researchers

Other

Range of services include:

Referrals to research studies

Other

E-mail list

Clinical or treatment centers

Advocacy

Other

Educational materials include:

Research updates

Newsletter

Website

Other

Conferences/workshops for:

Researchers

Other

Financial assistance for:

Other