Foundation for Prader-Willi Research

General Organizational Information
Organization Name: 
Foundation for Prader-Willi Research
Organization Acronym: 
FPWR
Year Established: 
2003
Type of organization: 
Condition(s)-specific International
Mission Statement: 
The mission of FPWR is to eliminate the challenges of Prader-Willi syndrome (PWS) through the advancement of research.
Status of organization: 
Incorporated non-profit
Professional/Medical Board?: 
Yes
501(c)3 Status?: 
Yes
Paid staff?: 
Yes
Board of Directors?: 
Yes
Serves the following conditions
Diseases: 
Prader-Willi syndrome
Organizational Contact Information
Prefix: 
Dr.
Title: 
Chair, Scientific Advisory Board
Degree: 
Ph.D.
First Name: 
Theresa
Middle Initial: 
V
Last Name: 
Strong
Address: 
104 Hume Avenue
Alexandria, VA, 22301
United States
See map: Google Maps
Phone: 
+1 703 683 7500
Fax: 
+1 703 936 0959
Email: 
grants@fpwr.org
ListServe: 
FPWR@yahoogroups.com
Website Address: 
http://www.fpwr.org
Resources and Services Provided
Languages spoken: 
English
Printed materials available in: 
English
Information provided for: 
Affected individuals
Families of affected individuals
Care providers
Parents
Health care professionals
Researchers
The public
Teachers
Students
Media
Legislators
Range of services include: 
Referrals to research studies
Referrals to matching individuals/families
Peer-to-peer counseling
Genetic information
Advocacy
Training
Speakers
Telephone helpline
E-mail list
Chat room
Educational materials include: 
Fact sheet(s)
Pamphlet(s)
Website
Newsletter
Journal articles on condition
Bibliography
Research updates
CD Roms
Conferences/workshops for: 
Affected individuals and/or families
Public
Researchers
Professionals
Disease Characterization: 
Phenotype/genotype correlation studies
Research Management: 
Linking researchers and families
Participant recruitment
Awarding research grants
Organization has intellectual property (IP)
Providing information about clinical trials
Major research interests of the organization: 
Genetics, neurobiology, obesity, therapy
Current projects: 
Genetics, animal models, therapy, neurobiology
Current Request for Proposals: 
2009 Request for Applications
Number of grants awarded in last calendar year : 
7
Amount of researching funding awarded in last year : 
$300000
Amount of funding allocated to drug development: 
135000
Lead development : 
45000
Phase 1 trials: 
43000
Phase 4 (post approval) studies: 
50000
Combined Federal Campaign (CFC)
#80146
4301 Connecticut Avenue NW - Suite 404
Washington, DC 20008-2369
Tel: 202.966.5557 Fax: 202.966.8553
info@geneticalliance.org