Scentia

General Organizational Information
Organization Name: 
Scentia
Year Established: 
1984
Type of organization: 
Research institute or organization
Status of organization: 
Incorporated non-profit
Professional/Medical Board?: 
No
501(c)3 Status?: 
No
Paid staff?: 
Yes
Board of Directors?: 
Yes
Serves the following conditions
Diseases: 
Alstrom Syndrome
Organizational Contact Information
Prefix: 
Dr
Degree: 
PhD
First Name: 
Patrick
Last Name: 
Corley
Address: 
Fighting Blindness 1 Christchurch Hall, High St.
D8
Ireland
Phone: 
+353 1 709 3050
Fax: 
+353 1 709 3010
Email: 
patrick_corley@yahoo.com
Website Address: 
http://www.fightingblindness.ie
Resources and Services Provided
Languages spoken: 
English
Printed materials available in: 
English
Information provided for: 
Affected individuals
Health care professionals
Care providers
Families of affected individuals
Researchers
Range of services include: 
Referrals to research studies
Referrals to matching individuals/families
Professional counseling
Peer support
Peer-to-peer counseling
Political action
E-mail list
Telephone helpline
Speakers
Services for the visually impaired
Advocacy
Educational materials include: 
Fact sheet(s)
Magazine
Membership directory
Video(s)/Movie(s)
Pamphlet(s)
Research updates
Newsletter
Audiotape(s)
Website
Conferences/workshops for: 
Affected individuals and/or families
Public
Researchers
Professionals
Combined Federal Campaign (CFC)
#80146
4301 Connecticut Avenue NW - Suite 404
Washington, DC 20008-2369
Tel: 202.966.5557 Fax: 202.966.8553
info@geneticalliance.org