Fight ALD

General Organizational Information

Organization Name:

Fight ALD

Organization Acronym:

Fighting Illness Through Education

Year Established:

2009

Type of organization:

National Condition(s)-specific organization

Mission Statement:

Our mission is to save the lives of our boys by bringing about awareness through education--of our community and our medical professionals--about the early onset of symptoms of Adrenoleukodystrophy, the simple diagnostic blood test, and treatments. We also have information about the adult onset form, Adrenomyeloneuropathy.

Status of organization:

Incorporated non-profit

Professional/Medical Board?:

Yes

501(c)3 Status?:

Yes

Paid staff?:

Board of Directors?:

Yes

Serves the following conditions

Organizational Contact Information

Title:

Founder/Administrative Director

First Name:

Janis

Last Name:

Sherwood

Address:

PO Box 3318

Vista, CA, 92085

Phone:

+1 760 212 5731

Email:

janis@fightald.org

Website Address:

http://www.fightald.org

Resources and Services Provided

Languages spoken:

English

Printed materials available in:

English

Information provided for:

Affected individuals

Health care professionals

Families of affected individuals

The public

Teachers

Students

Researchers

Other

Range of services include:

Referrals to research studies

Medical referrals

Peer support

Other

Awareness programs

Genetic information

Clinical or treatment centers

Speakers

Advocacy

Chat room

Other

Educational materials include:

Fact sheet(s)

Video(s)/Movie(s)

Pamphlet(s)

Website

Other

Conferences/workshops for:

Other

Financial assistance for:

Other