Fibromuscular Dysplasia Society of America

General Organizational Information

Organization Name:

Organization Acronym:

FMDSA

Year Established:

2003

Type of organization:

Condition(s)-specific organization

Mission Statement:

The Fibromuscular Dysplasia Society of America is a voluntary health organization dedicated to improving the lives of those afflicted with Fibromuscular Dysplasia by raising awareness and developing funds to promote research towards new medical treatments and diagnostic tools.

Status of organization:

Incorporated non-profit

Professional/Medical Board?:

Yes

501(c)3 Status?:

Yes

Paid staff?:

Yes

Board of Directors?:

Yes

Serves the following conditions

Diseases:

Fibromuscular Dysplasia

Organizational Contact Information

Prefix:

Ms.

Title:

Executive Director

Degree:

First Name:

Pamela

Middle Initial:

Last Name:

Mace

Address:

20325 Center Ridge Road Suite 620

Rocky River, OH, 44116

Phone:

+1 216 834 2410

Toll Free Number:

+1 1 888 709 7089

Email:

pam.mace@fmdsa.org

Website Address:

http://www.fmdsa.org

Resources and Services Provided

Languages spoken:

English

Printed materials available in:

English

Information provided for:

Affected individuals

Families of affected individuals

Health care professionals

Researchers

The public

Media

Range of services include:

Referrals to research studies

Referrals to matching individuals/families

Medical referrals

Speakers

Educational materials include:

Fact sheet(s)

Pamphlet(s)

Website

Newsletter

Slides

Conferences/workshops for:

Affected individuals and/or families

Professionals

Cohort Development:

Registry of affected individuals

Research Management:

Linking researchers and families

Participant recruitment

Initiating and conducting research