Federation de Maladies Genetiques Orphelines

General Organizational Information

Organization Name:

Year Established:

1969

Mission Statement:

Association reconnue d?utilit? publique, la F?d?ration des Maladies Orphelines est n?e de la volont? farouche de faire sortir de l?oubli les maladies orphelines et les personnes qui en sont atteintes.

Professional/Medical Board?:

501(c)3 Status?:

Paid staff?:

Board of Directors?:

Serves the following conditions

Diseases:

Rare Disorders

Organizational Contact Information

Title:

President

First Name:

Olivia

Last Name:

Niklas

Address:

Association loi 1901 5 rue Casimir Delvigne

FR 75006 Paris, 75006

Phone:

+1 1 43 25 98 00

Fax:

+1 1 43 54 32 56

Email:

afrg@www.softel.fr

Website Address:

http://www.maladies-orphelines.fr/

Resources and Services Provided

Information provided for:

Other

Range of services include:

Other

Educational materials include:

Other

Conferences/workshops for:

Other

Financial assistance for:

Other