Fanconi Anemia Research Fund, Inc.

General Organizational Information

Organization Name:

Organization Acronym:

FARF

Year Established:

1989

Type of organization:

Condition(s)-specific organization

Mission Statement:

Our mission is to find effective treatments and a cure for Fanconi anemia and to provide education and support services to affected families worldwide.

Status of organization:

Incorporated non-profit

Professional/Medical Board?:

501(c)3 Status?:

Yes

Paid staff?:

Yes

Board of Directors?:

Yes

Serves the following conditions

Organizational Contact Information

Title:

Executive Director

First Name:

Beverly

Last Name:

Mayhew

Address:

1801 Willamette Street Suite 200

Eugene, OR, 97401

Phone:

+1 541 687 4658

Fax:

+1 541 687 0548

Toll Free Number:

+1 888 326 2664

Email:

info@fanconi.org

Website Address:

http://www.fanconi.org

Resources and Services Provided

Languages spoken:

Arabic

Chinese

Czech

English

German

Greek

Finnish

French

Italian

Japanese

Norwegian

Portuguese

Russian

Spanish

Swedish

Printed materials available in:

English

French

Spanish

Information provided for:

Affected individuals

Families of affected individuals

Care providers

Health care professionals

Researchers

The public

Range of services include:

Referrals to matching individuals/families

Professional counseling

Peer-to-peer counseling

Grief counseling

Medical referrals

Referrals for non-medical services

Non-medical services

Financial referrals

Telephone helpline

E-mail list

Chat room

Educational materials include:

Fact sheet(s)

Pamphlet(s)

Website

Newsletter

Journal articles on condition

Research updates

Video(s)/Movie(s)

Resource guide

Membership directory

Conferences/workshops for:

Affected individuals and/or families

Researchers

Professionals

Financial assistance for:

Scholarships