FACE 22

General Organizational Information

Organization Name:

FACE 22

Organization Acronym:

Families Advocating for Chromosomal Education

Branch/Affiliation:

Western Pennsylvania

Year Established:

2009

Brochure thumbnail:

Brochure:

face_22_broc.pdf

Mission Statement:

Our mission is to be a support system for parents and caregivers of individuals affected with 22q11 deletion and to educate the medical field, education system and the general public about the condition.

Status of organization:

Incorporated non-profit

Professional/Medical Board?:

501(c)3 Status?:

Yes

Paid staff?:

Board of Directors?:

Yes

Serves the following conditions

Organizational Contact Information

Title:

Excutive Director

First Name:

Tammy

Middle Initial:

Last Name:

Rose

Address:

PO Box 2115

Cranberry Township, 16066

Phone:

+1 714 622 6096

Email:

megsmom008@aol.com

Website Address:

http://www.face22.org/

Resources and Services Provided

Languages spoken:

English

Printed materials available in:

English

Information provided for:

Affected individuals

Care providers

Families of affected individuals

The public

Teachers

Legislators

Researchers

Range of services include:

Referrals to local chapter or group

Referrals to research studies

Referrals to matching individuals/families

Medical referrals

Peer support

Referrals for non-medical services

Peer-to-peer counseling

Advocacy

Educational materials include:

Fact sheet(s)

Journal articles on condition

Website

Conferences/workshops for:

Affected individuals and/or families

Public