Fabry International Network

General Organizational Information
Organization Name: 
Fabry International Network
Organization Acronym: 
FIN
Branch/Affiliation: 
None
Year Established: 
2005
Type of organization: 
Condition(s)-specific organization
Mission Statement: 
FINs vision is of a world where every person affected by Fabry disease has the best quality of life possible through early diagnosis, treatment and cure. The primary aim of the FIN is to facilitate collaboration between organizations to support those affected by Fabry disease. It seeks to do this primarily through enabling communication, promoting best practice and acting as an independent forum for Fabry patients around the world.
Status of organization: 
Incorporated non-profit
Professional/Medical Board?: 
Yes
501(c)3 Status?: 
Yes
Paid staff?: 
No
Board of Directors?: 
Yes
Serves the following conditions
Diseases: 
Fabry Disease
Organizational Contact Information
Prefix: 
Mrs
Title: 
President
First Name: 
Megan
Middle Initial: 
F
Last Name: 
Fookes
Address: 
Australia
See map: Google Maps
Resources and Services Provided
Languages spoken: 
English
Finnish
Dutch
Information provided for: 
Affected individuals
Families of affected individuals
Care providers
Parents
Fathers
Mothers
Siblings
Grandparents
Health care professionals
Researchers
The public
Teachers
Students
Media
Legislators
Range of services include: 
Referrals to local chapter or group
Referrals to research studies
Peer Support
Peer-to-peer counseling
Genetic information
Advocacy
E-mail list
Educational materials include: 
Website
Newsletter
Conferences/workshops for: 
Affected individuals and/or families
Combined Federal Campaign (CFC)
#80146
4301 Connecticut Avenue NW - Suite 404
Washington, DC 20008-2369
Tel: 202.966.5557 Fax: 202.966.8553
info@geneticalliance.org