Evanosky Foundation

General Organizational Information

Organization Name:

Evanosky Foundation

Year Established:

2009

Mission Statement:

Our mission is to fund MLD research and develop programs to enhance the overall quality of life for families affected by MLD or other leukodystrophies.

Status of organization:

Incorporated non-profit

Professional/Medical Board?:

501(c)3 Status?:

Paid staff?:

Board of Directors?:

Serves the following conditions

Diseases:

Metachromatic leukodystrophy

Organizational Contact Information

Title:

Director

First Name:

Amy

Middle Initial:

Last Name:

McKenzie

Address:

143 Lakeside Place

Highland Park, IL, 60035

Phone:

+1 847 681 2731

Email:

amyschult1@yahoo.com

Website Address:

http://www.evanoskyfoundation.org

Resources and Services Provided

Languages spoken:

English

Information provided for:

Affected individuals

Health care professionals

Legislators

Media

Researchers

Range of services include:

Referrals to research studies

Peer support

Non-medical services

Conferences/workshops for:

Affected individuals and/or families

Public

Researchers

Professionals