Erfocentrum

General Organizational Information

Organization Name:

Erfocentrum

Branch/Affiliation:

Dutch national genetic resource and information centre.

Year Established:

2000

Type of organization:

General support or information organization

Mission Statement:

Through providing objective, reliable information the Erfocentrum supports people in making informed choices regarding their own health and the health of their children. The Erfocentrum also supports people in forming their own personal opinions about social and ethical aspects of genetics and biomedical issues.

Status of organization:

Unincorporated non-profit

Professional/Medical Board?:

501(c)3 Status?:

Paid staff?:

Yes

Board of Directors?:

Serves the following conditions

Diseases:

Genetic Conditions

Organizational Contact Information

Prefix:

Mrs.

Title:

Drs.

First Name:

Fenneke

Last Name:

van Swigchum

Address:

PO Box 500

Woerden, 3440 AM

Netherlands

See map: Google Maps

Phone:

+31 348 437 690

Fax:

+31 348 437 699

Email:

info@erfocentrum.nl

Website Address:

http://www.erfocentrum.nl/new

Resources and Services Provided

Languages spoken:

English

Dutch

Printed materials available in:

Arabic

Chinese

English

Italian

Portuguese

Information provided for:

Affected individuals

Families of affected individuals

Care providers

Parents

Fathers

Mothers

Siblings

Grandparents

Health care professionals

Researchers

The public

Teachers

Students

Media

Range of services include:

Referrals to local chapter or group

Referrals to research studies

Referrals to matching individuals/families

Medical referrals

Genetic information

Rehabilitation resource referrals

Telephone helpline

E-mail list

Educational materials include:

Fact sheet(s)

Pamphlet(s)

Booklet(s)

Website

Newsletter

Student materials

Conferences/workshops for:

Professionals