Dysautonomia Foundation, Inc.

General Organizational Information

Organization Name:

Year Established:

1954

Type of organization:

Condition(s)-specific organization

Mission Statement:

The Dysautonomia Foundation Inc. supports medical research, clinical care, public awareness and social services for the benefit of people with familial dysautonomia (FD).

Status of organization:

Incorporated non-profit

Professional/Medical Board?:

Yes

501(c)3 Status?:

Yes

Paid staff?:

Yes

Board of Directors?:

Yes

Serves the following conditions

Diseases:

Familial Dysautonomia

Organizational Contact Information

Title:

Executive Director

First Name:

David

Last Name:

Brenner

Address:

315 West 39th Street Suite 701

New York, 10018

United States

See map: Google Maps

Phone:

+1 212 279 1066

Fax:

+1 212 279 2066

Email:

info@famdys.org

Website Address:

http://www.familialdysautonomia.org

Resources and Services Provided

Languages spoken:

English

Printed materials available in:

English

Information provided for:

Affected individuals

Health care professionals

Care providers

Families of affected individuals

The public

Legislators

Range of services include:

Medical referrals

Peer-to-peer counseling

Awareness programs

Clinical or treatment centers

Speakers

Advocacy

Educational materials include:

Membership directory

Video(s)/Movie(s)

Pamphlet(s)

Research updates

Newsletter

Resource guide

Website

Conferences/workshops for:

Affected individuals and/or families

Researchers

Professionals