Distal Trisomy 10q Families

General Organizational Information

Organization Name:

Year Established:

1998

Type of organization:

General support or information organization

Mission Statement:

Distal Trisomy 10q brings families of children with Trisomy 10q together.

Status of organization:

Unincorporated non-profit

Professional/Medical Board?:

501(c)3 Status?:

Paid staff?:

Board of Directors?:

Serves the following conditions

Diseases:

Distal Trisomy 10q

Organizational Contact Information

First Name:

Daryl

Last Name:

Anderson

Address:

32991 SE White Oak Rd

Corvallis, OR, 97333

Phone:

+1 541 715 4541

Email:

daryl@darylanderson.com

ListServe:

trisomy10q@googlegroups.com

Website Address:

http://trisomy10q.darylanderson.com

Resources and Services Provided

Languages spoken:

English

Information provided for:

Affected individuals

Families of affected individuals

Care providers

Health care professionals

Researchers

The public

Teachers

Students

Media

Legislators

Range of services include:

Referrals to research studies

Referrals to matching individuals/families

E-mail list

Educational materials include:

Fact sheet(s)

Website

Membership directory

No Revisions:

I have reviewed my listing and there are no updates to be made at this time.