Cure CMD

General Organizational Information
Organization Name: 
Cure CMD
Year Established: 
2009
Type of organization: 
National Condition(s)-specific organization
Mission Statement: 
Cure CMD's mission is to bring research, treatments and in the future, a cure for Congenital Muscular Dystrophies. Cure CMD will do this by bringing together dedicated parent, government and research advocates throughout the world working on this common purpose. By focusing on this purpose, Cure CMD will find and fund high potential research and clinical trials. Success will be determined by clinical applications that improve the lives of those afflicted with CMD's .
Status of organization: 
Incorporated non-profit
Professional/Medical Board?: 
No
501(c)3 Status?: 
No
Paid staff?: 
No
Board of Directors?: 
Yes
Serves the following conditions
Organizational Contact Information
First Name: 
Patrick
Last Name: 
May
Address: 
PO Box 701
Olathe, 66051
Phone: 
+1 1 866 400 3626
Email: 
pat.may@curecmd.com
Website Address: 
http://www.curecmd.org
Resources and Services Provided
Languages spoken: 
English
Information provided for: 
Affected individuals
Health care professionals
Families of affected individuals
The public
Researchers
Other
Range of services include: 
Referrals to matching individuals/families
Peer support
Other
Advocacy
Chat room
Other
Educational materials include: 
Research updates
Website
Other
Conferences/workshops for: 
Affected individuals and/or families
Researchers
Other
Financial assistance for: 
Other
Combined Federal Campaign (CFC)
#80146
4301 Connecticut Avenue NW - Suite 404
Washington, DC 20008-2369
Tel: 202.966.5557 Fax: 202.966.8553
info@geneticalliance.org