The Cochrane Collaboration

General Organizational Information

Organization Name:

Organization Acronym:

Branch/Affiliation:

Cystic Fibrosis & Genetic Disorders Group

Year Established:

1995

Brochure:

cochrane_broc.pdf

Mission Statement:

The Cochrane Collaboration consists of a team of people who are interested in producing high quality systematic reviews of controlled clinical trials in cystic fibrosis (CF) and other genetic disorders.

Status of organization:

Unincorporated non-profit

Professional/Medical Board?:

501(c)3 Status?:

Paid staff?:

Yes

Board of Directors?:

Yes

Serves the following conditions

Diseases:

Adrenoleukodystrophy

Organizational Contact Information

First Name:

Tracey

Last Name:

Remmington

Address:

Institute of Child Health Alder Hey Children's Foundation Trust

Liverpool, L12 2AP

Phone:

+1 44 151 252 5696

Fax:

+1 44 151 252 5456

Email:

cfgd@liv.ac.uk

Website Address:

http://cfgd.cochrane.org

Resources and Services Provided

Languages spoken:

English

German

Printed materials available in:

English

Information provided for:

Affected individuals

Health care professionals

Care providers

Families of affected individuals

The public

Media

Researchers

Range of services include:

Non-medical services

Awareness programs

Educational materials include:

Pamphlet(s)

Newsletter

Website

Conferences/workshops for:

Researchers

Professionals