Coalition for Pulmonary Fibrosis

General Organizational Information

Organization Name:

Year Established:

2009

Mission Statement:

The Coalition for Pulmonary Fibrosis (CPF) is a 501(c)(3) nonprofit organization, founded in 2001 to accelerate research efforts leading to a cure for idiopathic pulmonary fibrosis (IPF), while educating, supporting, and advocating for the community of patients, families, and medical professionals fighting this disease.

Status of organization:

Incorporated non-profit

Professional/Medical Board?:

Yes

501(c)3 Status?:

Yes

Paid staff?:

Yes

Board of Directors?:

Yes

Serves the following conditions

Organizational Contact Information

Title:

Chief Executive Officer

First Name:

Mishka

Middle Initial:

Last Name:

Michon

Address:

1659 Branham Lane Suite 227

San Jose, CA, 95118-5226

Fax:

+1 866 683 9458

Toll Free Number:

+1 888 222 8541

Email:

info@coalitionforpf.org

Website Address:

http://www.coalitionforpf.org

Resources and Services Provided

Languages spoken:

English

Spanish

Printed materials available in:

English

Spanish

Information provided for:

Affected individuals

Health care professionals

Care providers

Families of affected individuals

The public

Legislators

Media

Students

Researchers

Range of services include:

Referrals to local chapter or group

Referrals to research studies

Professional counseling

Medical referrals

Rehabilitation resource referrals

Peer support

Grief counseling

Referrals for non-medical services

Financial referrals

Peer-to-peer counseling

Awareness programs

Political action

Financial/estate planning

E-mail list

Telephone helpline

Genetic information

Clinical or treatment centers

Pen pal program

Genetic counseling

Advocacy

Chat room

Educational materials include:

Fact sheet(s)

Video(s)/Movie(s)

Pamphlet(s)

CD Roms

Research updates

Newsletter

Bibliography

Resource guide

Website

Student materials

Conferences/workshops for:

Affected individuals and/or families

Public

Researchers

Professionals