Coalition for Heritable Disorders of Connective Tissue

General Organizational Information
Organization Name: 
Coalition for Heritable Disorders of Connective Tissue
Organization Acronym: 
CHDCT
Year Established: 
1990
Mission Statement: 
The goals of CHDCT are to bring about greater awareness and understanding of heritable disorders of connective tissue in medical professional and in the public at large; to encourage teaching in the schools, to train health practitioners to help identity, diagnose, and treat various heritable connective tissue disorders; and, to foster research.
Professional/Medical Board?: 
Yes
501(c)3 Status?: 
No
Paid staff?: 
No
Board of Directors?: 
No
Serves the following conditions
Diseases: 
Connective Tissue Disorders
Organizational Contact Information
Title: 
CEO President
First Name: 
Sharon
Last Name: 
Terry
Address: 
4301 Connecticut Avenue Suite 404
Washington, DC, 20008-2304
Phone: 
+1 202 362 9599
Fax: 
+1 202 966 8553
Email: 
chdct@pxe.org
Resources and Services Provided
Languages spoken: 
English
Information provided for: 
Other
Range of services include: 
Referrals to local chapter or group
Referrals to matching individuals/families
Other
Advocacy
Other
Educational materials include: 
Fact sheet(s)
Bibliography
Website
Other
Conferences/workshops for: 
Researchers
Other
Financial assistance for: 
Other
Combined Federal Campaign (CFC)
#80146
4301 Connecticut Avenue NW - Suite 404
Washington, DC 20008-2369
Tel: 202.966.5557 Fax: 202.966.8553
info@geneticalliance.org