CMT United Kingdom

General Organizational Information

Organization Name:

CMT United Kingdom

Year Established:

1988

Brochure:

Awareness leaflet.pdf

Type of organization:

Condition(s)-specific organization

Mission Statement:

CMT United Kingdom is working to support those affected by Charcot-Marie-Tooth Disease, also known as Hereditary Motor and Sensory Neuropathy.

Status of organization:

Incorporated non-profit

Professional/Medical Board?:

501(c)3 Status?:

Paid staff?:

Yes

Board of Directors?:

Yes

Serves the following conditions

Diseases:

Charcot-Marie-Tooth Disease

Organizational Contact Information

Title:

Mrs

First Name:

Karen

Last Name:

Butcher

Address:

98 Broadway Southbourne

Bournemouth, BH6 4EH

United Kingdom

See map: Google Maps

Phone:

+44 1202 432048

Toll Free Number:

+44 800 6526312

Email:

info@cmtuk.org.uk

Website Address:

http://www.cmt.org.uk

Resources and Services Provided

Languages spoken:

English

Printed materials available in:

English

Information provided for:

Affected individuals

Families of affected individuals

Health care professionals

Researchers

The public

Teachers

Legislators

Range of services include:

Referrals to research studies

Peer-to-peer counseling

Medical referrals

Genetic information

Rehabilitation resource referrals

Non-medical services

Political action

Telephone helpline

E-mail list

Chat room

Educational materials include:

Fact sheet(s)

Pamphlet(s)

Booklet(s)

Magazine

Website

CD Roms

Conferences/workshops for:

Affected individuals and/or families

Professionals

Research Management:

Participant recruitment